Such reactions make it impossible for a person with the disease to even attempt testing themselves for it, leave alone making their condition known to the people around them. This hostility limits the effectiveness of AIDS related awareness programs in India and can be attributed to the general levels of knowledge about HIV and AIDS and in particular to the causes of AIDS and the routes of HIV transmission. Most people are aware of how serious the illness is. They are also aware that as of now, there is no cure. What they do not know is that it isn’t easily transmitted, that with the right medication, people can live out their natural lifespan with HIV and die of natural causes. HIV isn’t the death sentence it was 10 to 15 years ago. The possibility of finding a cure is imminent. There is no need to fear it to the extent of neglecting, rejecting and denying the existence of people with HIV. Nevertheless, it is a disease to be extremely wary of, a disease that commands constant vigilance. It’s a single act of imprudence that alters your life forever.
Owing to the extra baggage that comes with being HIV positive- that of why, how and when-, coping with the disease is emotionally very difficult. People with HIV have to face discrimination from quarters they never expected to turn against them. Studies have documented HIV/AIDS- related Discrimination, Stigmatization and Denial in contexts such as the family, the community, the health care system, and the workplace. Discriminatory restrictions have also been reported in relation to travel, migration, insurance and health benefits. Family responses to infected relatives are heavily influenced by the community perception of the disease. The family may fear social isolation and hence may insist on concealing the diagnosis thus straining relationships within the family as well affecting the overall analysis of the extent of the epidemic. People with HIV are incorrectly perceived to be a source of infection to others by just being in their presence. Such myths are fuelled by misconceptions regarding the transmission of the virus. Many people believe that mosquito bites, sharing toilet seats and swimming pools with people with HIV would endanger them as well. These beliefs are completely misconstrued and should not be encouraged.
The internet is replete with websites offering every sort of information about HIV and AIDS, from the initial symptoms, to the means of contracting the illness to counselling for people infected with the virus as well as advice columns that answer every bizarre, outlandish and farfetched anxiety of people who are afraid that they have HIV. In India, government hospitals in every state provide free counselling and guidance for people who fear they have contracted the infection or people who are trying to cope with it, under the guidance of the National AIDS Control Organisation.
And yet HIV/AIDS remains a very real threat to the survival of the human species, if global warming, nuclear warfare and terrorism don’t kill us first. The speed with which it is spreading is of growing concern to governments all around the World. In India alone, the incidence of HIV infections is projected to be around 20- 25 million by 2010 (UNAIDS, 2002). India has the second largest population of individuals with HIV/AIDS although it lags behind Sub-Saharan countries quite substantially in this regard. What could possibly be the reason behind such an epidemic? In my opinion, this epidemic has been primarily caused by the inability of the average Indian to talk about taboo topics such as sex, infidelity and drug abuse. Even sex workers find it difficult to talk to each other about sex and HIV. They find it easier to talk to an outsider as they feel that foreigners aren’t restricted by the same social mores and rules (Interview with Raney Aronson, Frontline, June 2004). Such denial discourages people from getting tested thus endangering all the people they get involved with at later dates, from talking about their infection and from leading normal lives if they are indeed infected.
It appears that HIV is an infection that exposes the hypocrisy of society. The HIV epidemic in India has brought out several issues in Indian society that have always been known to have existed but have never been acknowledged. One such issue is that of the sale of young girls into prostitution. What sort of desperation and poverty would force a father to sell his daughter into prostitution? If we are to combat this epidemic we have to acknowledge several negative aspects of our society that though unpleasant, exist nonetheless. Once we overcome this barrier we may be able to contain the spread of this deadly disease that robs a person of their dignity and peace of mind while forcing them to face the reality of their existence, that they have lived in ignorance of, for all their ‘healthy’ life, – that of their inevitable death, from AIDS or otherwise. In actuality, HIV isn't really a death sentence, it's just a way to make a shorter period of your life count for more.